Multiple sclerosis
Hi!
i haven’t seen a thread with anything to do with MS. There’s a good chance I missed something, if so, please feel free to correct me. Just looking to connect with other people with MS. I hope you’re out there! 👋🏼
@ItsInsignificant
Hello,
Welcome!! Im sure you are not alone, there are others on 7cups with MS i hope. Maybe broaden your search with words like struggles or new freinds :-)
Blessings, Day
@ItsInsignificant
Hey, there have definitely been members with MS. The forum search feature currently only works on thread titels, so a lot goes missing. The search does bring up these:
https://www.7cups.com/forum/DisabilitySupport_47/PhysicalDisabilitiesImpairements_261/MultipleSclerosis_230155/
https://www.7cups.com/forum/DisabilitySupport_47/ChronicConditionsSupport_710/TOPTENTHINGSIHATEABOUTHAVINGMULTIPLESCLEROSIS_44553/
https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/AMAMultipleSclerosis_23704/
As far as I know I don't have MS, but I have had some symtpoms that match with some of the early MS symptoms. I've had MRI twice, about a decade apart specifically because doctors were concerned it was a possibility.
@AffyAvo thanks so much for your reply. I'm new to 7 cups and trying to figure it all out. I'm sorry you don't have a diagnosis, I know how frustrating it is. I hope you are feeling well and that it continues! Thanks for the links as well, I will check them out.
@ItsInsignificant Thanks! I do have some diagnoses but some of my symptoms are still rather questionable if they fit with any of them. Hopefully nothing serious is still missing.
I hope you're able to manage your symptoms ok, I know MS can be fairly unpredictable.
As for the forums, there's been some changes so I think many of us are trying to figure them out, you're not alone in that respect!
There are other posts about MS too, but searching MS gets hits from words with those consecutive letters like poems, so it's hard to find the relevant threads. Hopefully some others will show up here!
Hi! I am brand new here today and I am 34 yo F with MS! MS Reddit is a good community too, very supportive and answers lots of questions, but I liem that this place feels more interactive. Do you know how to save friends on here or private message people? Is there a feature for that? I am hoping to find a way to save and message friends because that sure would be helpful.
@pioneeringMoon7172 In 1-1s members can only message listeners. You can see all listeners you have connected with under my progress.
In terms of members, I suggest just booking their profile pages or saving a list in notes or something like that. Back when there was a feed feature we were able to follow other members too, so you may see references to that in old threads, but the feed was removed a long time ago.
Hello there, I have Ms too, trying to find more people who can understand us..hope you're still active here
@ItsInsignificantI was living with MS for years before being officially diagnosed in 2021. I got annual MRIs, and I did not take any meds due to side effects. I had one flare up in 2021. My legs decided to a break and I was numb from the waist down. I decided to try MS-4. The numbness and Muscle spasms went away after a couple of weeks, but it took almost 3 months to walk properly without a cane. In June, it will be four years without incident, and I am extremely happy that I made the decision to not take any meds and went for the MS-4 formula even though my neurologist got upset and one told me to quit my job because I will be disabled. Well, I am not disabled, I still refuse to take those meds, and I am doing just fine. Believe in yourself and go with your instincts. Doctors don't know it all. I’m surprised a lot of people with MS haven’t heard of the MS-4 protocol, I hope you find it helpful
