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MistyMagic profile picture
Happy March!
by MistyMagic
Last post
Thursday
...See more Happy March to you all! March is the start of Spring in the northern hemisphere and we have several Awareness topics too, so a lot going on! March is all about raising awareness of Multiple Sclerosis (MS)! We have posts about MS here:- Introduction to MS [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/MSAwarenessMonth_324835/] MS Informational [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/MultipleSclerosisLetsLearnMore_325117/] Just diagnosed with MS [https://www.7cups.com/forum/disabilities/ChronicConditionsSupport_710/JustdiagnosedwithMS_59238/] Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ChronicConditionsSupport_710/Multiplesclerosis_257645/] All About MS [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500] March is all about raising awareness of Cerebral Palsy (CP)! Interview about CP [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] CP Survival Guide [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] This week is also about raising awareness of Hearing. Menieres Disease [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/LivingWithMenieresDisease_327897/] To make sure you don't miss out on other topics just join our taglist Here [https://www.7cups.com/forum/disabilities/Checkinwithus_1053/2024TaglistDisabilitySupport_202464/] Do you have any plans for March? Share with us one goal you have for yourself this Spring.
AffyAvo profile picture
Rare Disease Day 2025
by AffyAvo
Last post
Wednesday
...See more February 28 is Rare Disease Day [I Support Rare Disease Day] More than you can Imagine! While the individual diseases may be rare, there's many of us with rare diseases! * 300 - 400 million people are living with a rare disease * About half of them are children * There are more than 6000 rare diseases, and some state there are more than 10000 * 70-80% of rare disease are genetic * 1/5 of cancers are rare diseases * 95% have no approved treatment Ways to Participate: Learn about a rare disease Talk to people and educate them about rare diseases Check out the events at https://www.rarediseaseday.org/ [https://www.rarediseaseday.org/#] Get Political. We need research and treatments developed for people and need inclusion of all backgrounds - inclusive of gender, sex, religion, ancestry, and nationality. Everyone deserves proper healthcare. Can you name a rare disease? Have you been affected by a rare disease (either directly yourself or indirectly)? What are you doing for Rare Disease Day? Sources: https://www.rarediseaseday.org/ [https://www.rarediseaseday.org/] https://globalgenes.org/rare-disease-facts/
MistyMagic profile picture
Pain? P A I N? PAIN!PAIN!PAIN!PAIN?
by MistyMagic
Last post
February 15th
...See more February brings the start of the Disability Support Community focus on Pain! We all get pain. Some of us get pain sometimes. Some of us get pain most of the time. Some of us get pain all of the time! So whatever your thoughts on pain, or level of daily pain, or threshold of pain (and we will talk more about that later on) read on and let's find out more about pain together! This will be part of the 'Pain Cafe' series that will include open chats in the 'Disability Support' [https://www.7cups.com/chat/?c=2_b0dd39dc0ad3f07akKj6u2oym2BA4i8pC6eGFA] room, as well as hosted discussions (hosts wanted! message me!) [https://www.7cups.com/@MistyMagic] that will be advertised in this thread so please reply if you want to be tagged about future posts, and discussions in this series. The 'Pain Cafe’ is somewhere informal that is a safe space for us to learn and share together. We can come together and have a coffee, tea, or juice, and choose our favourite cake or cookie too! With the bonus of no calories or crumbs! First let's spend a little time discussing “What Is Pain?” Pain is weird, right? It’s both a physical and emotional experience, sometimes sharp and immediate, other times dull and lingering. It’s your body’s way of saying, “Hey, something’s not right,” whether that’s a stubbed toe, a heartbreak, or even stress manifesting as a headache. But pain isn’t just about suffering—it’s also a teacher. It tells you where your limits are, forces you to pay attention, and even helps you grow. Ever notice how people who’ve been through tough times often have a deeper sense of empathy? Pain shapes you, for better or worse. And then there’s the strange part—how pain can sometimes be subjective. Two people can experience the same injury but react completely differently. Some folks push through insane amounts of pain (think athletes or soldiers), while others feel every tiny discomfort intensely. It’s all about perception, past experiences, and even brain chemistry. Oh, and let’s not forget the bizarre cases where pain doesn’t work the way it’s “supposed to.” Like phantom limb pain - when someone loses a limb but still feels sensations where it used to be. Or chronic pain, which can be where your body keeps sounding the alarm even when there’s no real injury. Or chronic pain, long-term pain from constant re-injury or inflammation. At the end of the day, pain is just part of being human. It sucks, sure, but it also reminds us we’re alive. If pain is a warning signal, listen to it and allow healing. If pain is chronic or misleading, it can be important to retrain the brain and nervous system to stop overreacting. Learning to recognize the difference allows for better pain management and quality of life. Pain is a complex sensory and emotional experience that signals potential or actual harm to the body. It’s essentially the body's warning system, alerting you to injury, illness, or danger. Pain can be categorized in different ways, such as: * Acute pain – Short-term, typically caused by injury or illness (e.g., a cut, burn, or broken bone). * Chronic pain – Long-lasting pain (lasting more than three months) that can sometimes persist even after the initial injury has healed (e.g., arthritis, nerve damage). * Neuropathic pain – Pain caused by nerve damage or dysfunction rather than an obvious physical injury (e.g., sciatica, phantom limb pain). How Does the Brain Perceive Pain? The perception of pain involves a complex process that includes sensory input, nerve signaling, and brain interpretation. Here’s how it works: * Detection (Nociception): Specialized nerve endings called nociceptors detect harmful stimuli (heat, pressure, chemicals, or injury). These receptors are located in the skin, muscles, joints, and organs. * Transmission: The nociceptors send electrical signals through sensory neurons to the spinal cord. From there, the signals travel up to the brainstem and thalamus, which act as relay centres. * Processing in the Brain: The thalamus sends the pain signals to different brain regions: * Somatosensory Cortex: Determines the location and intensity of pain. * Limbic System: Processes the emotional aspects of pain. * Prefrontal Cortex: Helps with decision-making and how to react to the pain. Pain Perception: Your brain interprets the signals as pain and decides how to respond—whether to move away, seek help, or endure it (we all know that feeling don't we?) Modulation: The brain can amplify or suppress pain using neurotransmitters like endorphins (natural painkillers) and serotonin. This explains why adrenaline can make you temporarily "ignore" pain in emergencies. Why Does Pain Feel Different for Everyone? Pain perception varies based on: * Genetics & Biology (Some people have a higher pain threshold). * Psychological State (Stress and anxiety can heighten pain). * Past Experiences (Chronic pain sufferers often have altered nerve responses). Pain isn’t just a physical sensation—it’s also influenced by mood, expectations, and memory. This is why two people can have the same injury but experience pain differently. Over to you! Q. What do you think— is pain a necessary evil, a friend, or just a glitch in evolution? Q. Do you have pain? How would you describe it? Sharp, Hot? Stabbing? Dull? Share with us. Q. Tag someone that you think might be interested in joining in with our 'Pain Cafe' and the series of forum posts here too!
Dagon071 profile picture
Hi All! I need your help.
by Dagon071
Last post
1 day ago
...See more Sorry if this sounds opportunistic. I do not know if this is allowed.  I'm working on research to understand the accessibility challenges individuals face with VR/immersive technologies. If you have some conditions and use VR, I would like to talk with you for 45-60 minutes online. I can provide further details. I'm hoping to recommend solutions from the insights gathered. Any help will be appreciated!
bebe8 profile picture
Feels like I can't cope at all with this and that I'm in a catch-22
by bebe8
Last post
2 days ago
...See more Hi, I have a disability and chronic illnesses, I'm in my 40s, and I'm from the USA. It feels like I can't cope at all with my illness symptoms. I have had diagnosed chronic illnesses for many years, but in the last month, I developed a new illness, which is still undiagnosed. (I know what happened, but the doctors don't diagnose anything from it. I was injured from a medication that was forced on me: steroids. I have not been the same since getting them. Nearly died. That's another story.) The issue the steroids caused is spreading and worsening each day. The symptoms change and compile on top of each other. I can't get help at the ER; they just discharge me after taking labs and a CT scan. They won't admit me, and I don't have any doctors that have hospital admission privileges. I have lost so much functionality, and I feel that time is/was of the essence to get diagnosed and treated, to prevent further damage or even death. To be blunt, I truly feel like I'm in my final month or final few months of life, maybe even less than that. I have lost so much weight. They wouldn't even admit me when I told them I had not eaten in almost a month. A month of no food means I was essentially close to death. So, I tried to sign up for hospice, but I was able to eat the next day and ended up going onto palliative care instead. I still can hardly eat much, but at least I'm eating some. I think I'm getting about 700 calories per day. All through February I got about 100 calories per day, though. I was hardly able to drink and swallow liquids. After 3 days of no liquids you die. I was able to drink some but not enough to sustain life for much longer. Luckily now I can drink again, but not enough. I'm still dehydrated. They would not hydrate me because there's a shortage of saline bags and they have to ration them off. I understand. The bags have to go to their most critical patients, basically those who are literally dying.  I can't continue to go to the ER because they'll send me home AND I'll end up catching more viruses / infections there. I became very immunocompromised last month, which showed in my labs.  Anyway, right now, at this very second, I am in such a bad way physically, and I am just in so much pain and agony. The suffering is top level. I am near my max of what my body will handle. :(  The worst part is that I can't get help at the hospital, as I said. Also, my outpatient doctors would take too long. I told my doctor I could not eat at all and she didn't offer any follow-up. I even told a gastro doctor that. He sent me for one test, for h.pylori. i didn't get the test yet. But it's not just my stomach. I've had issues through my entire body for years, but now there are new issues in the same organs... heart, brain, lungs, legs, arms, basically my entire body! My body is SO weak, and I don't have the strength, nutrients, fat reserves (very emaciated), caloric intake, or wellness to make any progress to at least return back to my baseline. My immune system isn't fighting anything off and I have so many viruses on top of each other as well as strep throat and a UTI spreading to my kidneys. I have bronchitis and getting over Covid, too. My migraines (pre-existing condition) are so severe. I have heart and lung issues (pre-existing). I have so much more... too much to get into here.  Now I feel like I need to do some spiritual healing, but that's just grasping at straws. I'm a realist. I know what all this means. I'm in my final chapter of life, and it's very apparent.  Right now I feel like I can't cope, and I don't know what to do about it. I really need the hospital, but I can't go because they send me home, like I said. I will try some guided meditation. :(
Gamerchick2025 profile picture
Pierre Robin syndrome
by Gamerchick2025
Last post
Thursday
...See more Anyone have Pierre Robin syndrome when your missing cromosone 21 which makes your organs not fully develop at birth I had a cleft palette and cleft lip which made me have a speech problem and learning/development issues
MistyMagic profile picture
Happy March!
by MistyMagic
Last post
Thursday
...See more Happy March to you all! March is the start of Spring in the northern hemisphere and we have several Awareness topics too, so a lot going on! March is all about raising awareness of Multiple Sclerosis (MS)! We have posts about MS here:- Introduction to MS [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/MSAwarenessMonth_324835/] MS Informational [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/MultipleSclerosisLetsLearnMore_325117/] Just diagnosed with MS [https://www.7cups.com/forum/disabilities/ChronicConditionsSupport_710/JustdiagnosedwithMS_59238/] Multiple Sclerosis [https://www.7cups.com/forum/disabilities/ChronicConditionsSupport_710/Multiplesclerosis_257645/] All About MS [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/InterviewDiariesGrabaCuppaandLearnaboutMultipleSclerosis_325500] March is all about raising awareness of Cerebral Palsy (CP)! Interview about CP [https://www.7cups.com/forum/disabilities/DisabilityDiary_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] CP Survival Guide [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewDiariesLivingwithCerebralPalsy_326155/] This week is also about raising awareness of Hearing. Menieres Disease [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/LivingWithMenieresDisease_327897/] To make sure you don't miss out on other topics just join our taglist Here [https://www.7cups.com/forum/disabilities/Checkinwithus_1053/2024TaglistDisabilitySupport_202464/] Do you have any plans for March? Share with us one goal you have for yourself this Spring.
blitheSun94 profile picture
Behavior Therapist- AMA!
by blitheSun94
Last post
Thursday
...See more I am a transitional behavior therapist in the field of Applied Behavioral Analysis. I work primarily with teens and adults with intellectual disabilities. Ask away!
AffyAvo profile picture
Rare Disease Day 2025
by AffyAvo
Last post
Wednesday
...See more February 28 is Rare Disease Day [I Support Rare Disease Day] More than you can Imagine! While the individual diseases may be rare, there's many of us with rare diseases! * 300 - 400 million people are living with a rare disease * About half of them are children * There are more than 6000 rare diseases, and some state there are more than 10000 * 70-80% of rare disease are genetic * 1/5 of cancers are rare diseases * 95% have no approved treatment Ways to Participate: Learn about a rare disease Talk to people and educate them about rare diseases Check out the events at https://www.rarediseaseday.org/ [https://www.rarediseaseday.org/#] Get Political. We need research and treatments developed for people and need inclusion of all backgrounds - inclusive of gender, sex, religion, ancestry, and nationality. Everyone deserves proper healthcare. Can you name a rare disease? Have you been affected by a rare disease (either directly yourself or indirectly)? What are you doing for Rare Disease Day? Sources: https://www.rarediseaseday.org/ [https://www.rarediseaseday.org/] https://globalgenes.org/rare-disease-facts/
GrimMoonflowersystem profile picture
I'm confused...
by GrimMoonflowersystem
Last post
Tuesday
...See more I don't understand whats wrong with my body, I'm always dizzy or out of breath and even standing for to long can make me start swaying, a lot of my family has physical disabilities and I don't know what to do, I have a phobia of shots and I don't want a blood draw but what I'm dealing with is also getting concerning, does anyone have advice for what I could do?
audienta profile picture
Severe ME Awareness Day
by audienta
Last post
Tuesday
...See more Hello everyone, I wanted to post here today as August 8th is Severe ME Awareness Day. (Source [https://worldmealliance.org/2022/08/severe-me-day-august-8th-2022/]) ME is a neuroimmunological multisystem disorder. The main symptom is a severe intolerance to any form of exercise, stress, and stimuli. It also comes with a lot of other symptoms including pain, fatigue, brain fog, orthostatic intolerance, gastroenterological issues, neurological symptoms and so on. ME is categorised into mild, moderate, severe and very severe. Today, we think of those who have severe and very severe ME and of those who have already died of this disease. People with (very) severe ME are mostly or completely bedbound, often have to lie in a dark and quiet room for most of their time, and some are even completely dependent on carers and a feeding tube to stay alive. So far, there is no treatment for ME. The only recommended strategy to deal with it is pacing, which means, staying within your boundaries to not trigger the bad response to exercise, stress and stimuli that I've mentioned before. Healing from ME completely is unlikely at the moment. We can only hope that research finds a solution for all ME patients soon.  Therefore, let's think of the severe(st) ME patients around the world today, hope for a better future for them, and grieve those who we have lost.  Thank you for reading the post. If you want to learn more about ME, here's a link [https://www.meresearch.org.uk/what-is-me/]. MistyMagic has also interviewed someone with ME in the past, so here's the link to the interview [https://www.7cups.com/forum/disabilities/InterviewsDiaries_2664/InterviewLivingwithCFS_328938/]. Take care, audienta
WhataDime713 profile picture
Just diagnosed with MS
by WhataDime713
Last post
Tuesday
...See more Hi, all. I have panic disorder and was just diagnosed with multiple sclerosis in the middle of a panic episode. I don't know anyone with MS and feel very alone. It would be great if there were someone out there I could talk to. I have an appointment with an MS specialist, but it was pushed back a month, and there is a local support group, but it, too, isn't meeting for several weeks. Finding out about this now and not having anyone to discuss my diagnosis with is frustrating and frightening.
ItsInsignificant profile picture
Multiple sclerosis
by ItsInsignificant
Last post
Tuesday
...See more Hi! i haven’t seen a thread with anything to do with MS. There’s a good chance I missed something, if so, please feel free to correct me. Just looking to connect with other people with MS. I hope you’re out there! 👋🏼
MistyMagic profile picture
Why Do We Get Chronic Pain?
by MistyMagic
Last post
March 3rd
...See more Chronic pain is such a tricky thing, right? It’s not just about a past injury or a condition—it’s like your nervous system gets stuck in a loop, constantly sending pain signals even when there’s no real threat. So why does this happen? And more importantly, what can we do about it? Why Do We Get Chronic Pain? * Old Injuries That Don’t Let Go – Sometimes, an injury heals, but the nerves keep misfiring. It's like an alarm that won’t turn off. * Nervous System Sensitization – Your brain and spinal cord can actually get better at feeling pain, which is the worst kind of skill to develop. * Inflammation & Autoimmune Issues – Conditions like arthritis or fibromyalgia keep your body in a state of distress. * Emotional & Mental Factors – Stress, trauma, and anxiety can amplify pain, turning it up like a volume knob. * Lifestyle Issues – Poor posture, lack of movement, or even diet can contribute. What Can We Do About It? ✔️ Move, But Smartly – Gentle exercises like swimming, yoga, or even just walking can break the pain cycle. ✔️ Calm the Nervous System – Meditation, deep breathing, and mindfulness can help dial down the overactive pain response. ✔️ Nutrition Matters – Anti-inflammatory foods (think turmeric, omega-3s, leafy greens) can help keep pain in check. ✔️ Physical Therapy & Alternative Treatments – Acupuncture, massage, and even nerve stimulation can make a huge difference. ✔️ Medication & Medical Help – Sometimes, meds (from painkillers to antidepressants) or treatments like nerve blocks are needed. ✔️ Address the Emotional Side – Therapy, journaling, or even just venting to a friend can help reduce stress-induced pain. Long Term:Is chronic pain always chronic pain? A wierd question right? But . . what if the pain is not chronic but continuous instead. What if there is a cause that keeps happening that could be stopped or fixed? Maybe it is a re-injury, or a new injury? Maybe it is something that needs addressing, those are always things that run through our minds and that often get overlooked or ignored and put under the umbrella term of 'chronic pain'. So take time to examine your own pain. Keep a 'Pain Diary'. Jot down how you are feeling, what your pain score is, what you have done, did something cause you more pain, or less? Now over to you! * When does your pain feel worse? After certain activities? Certain emotions? * Have you noticed any foods that make it better or worse? * What’s one small change you could try today to see if it helps? Pain is complex, but understanding it is the first step to managing it. What’s been your experience with chronic pain? Have you found anything that helps? Written as part of the Disability Support Community Articles. More can be found here  [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/ArticlesResourcesAlphabeticList_233701/] If you have a condition or 'Awareness Campaign' that you feel we should recognise please message either myself @MistyMagic [https://www.7cups.com/@MistyMagic] (teens and adults) or @AffyAvo  [https://www.7cups.com/@AffyAvo](adults)
olivePineapple3146 profile picture
I'm fed up
by olivePineapple3146
Last post
March 3rd
...See more Any ideas

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more activity in the Disability Community? Join as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Hướng dẫn cộng đồng

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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